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A grassroots ALS/MND
"Website" with the purpose of Inspiring
Self Empowerment through Information & Knowledge.
This is me, Kyle Hahn. In 1994, at age 36,
I was beginning to realize my dreams. My 20 year
journey as a guitarist was reaching a pinnacle, playing concerts opening for Robin Trower, Molly Hatchet, Blackfoot and
Foghat.
Having
studied the guitar styles of legends Chuck Berry, Eric Clapton,
Jimi Hendrix, Jimmy Page, Carlos
Santana, Lonnie Mack, Billy Gibbons, Muddy Waters, John Lee Hooker, Albert King
and Robert Johnson, I always had one foot in the blues and the other on Rock 'n' Roll.
I was working during the day for a government
contractor, supplying the military and law
enforcement agencies, such as the FBI. At
night, I played licks like I’d never hit
before, and we were booked 7 nights a week.
It was during late 1994, I noticed
a weakness in my thumb, that would come and
go. Soon after, I stopped being able to hold
my guitar pick altogether.
As I began to notice
other weaknesses, I realized there was something
terribly wrong. By late ’95, I received the
nightmare diagnosis of ALS, Amyotrophic Lateral
Sclerosis, commonly known as Lou Gehrig’s Disease.
By this time, I was no longer able to hold
my guitar, my gait was jerky and my voice had become
strained and hoarse. Only a few months after the
diagnosis, having switched to playing keyboards, ALS
forced me to adapt my passion with music.
I was
forced to give up the guitar but I picked up another
beat instead. That is to heighten public awareness of ALS and to awaken our legislators to funding more ALS research
and pass laws to make living with ALS a mission of
dignity and quality.
One of the ways I
accomplish this is co-founding and serving as president to the ALS
March of Faces, a non-profit organization dedicated to raising
awareness through self-empowerment. The ALS March of Faces
Banner is a continuing photographic display of People with ALS.
These
pages reflect some of the ways I've been continuing
that beat.
MORE 
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ALS /MND AWARENESS ONLINE
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Bob Broedel's The ALS Digest
Click to send an email to bro@huey.met.fsu.edu
with the words
"Please Subscribe me."
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Archived back
issues of the ALS Digest - click HERE
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HEAR *Lou Gehrig's Farewell
Speech*- click HERE
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Wendy Abrams, Exec.
Director of
Les Turner ALS Foundation and Kyle
Miriam, Mike Havlicek,
President of ALS Association,
Kyle, Terry and PALS Kevin Heidrich
PALS Gary Biss (an
original OCT '97 Rallyer), Terry and Kyle
at Gary's place in Sedona, AZ
Caregiver
Pat Snyder, RN and Kyle
outside her home in Tarzana, CA
Marc Reiman and Dick
Essey, Chairman Bay Area ALSA and ALSA Trustee,
San Francisco, CA - August 1999
"PALS Across America - Sea to
Shining Sea"
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The
ALS Awareness Ribbon and Lapel Pin was inspired
by The Navy Pinstripe uniform worn by Yankee
Lou Gehrig who died of ALS in 1941.
Laurel Pieper of NY, whose Brother Eric was
stricken and PALS Dianne Morford of MA, created
this ALS Awareness ribbon in 1997 - click
HERE
 What
is ALS for KIDS -
a virtual tour designed for children-
click
HERE
- My testimony at the
FDA hearing on
Myotrophin, May 1997
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 - My interview on NBC
Dateline's
"Borrowed Time" July 1997
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 Judy Repass ALS advocate, diagnosed
with ALS in 1975 - click
HERE
Music Giant - Guitarist Ronnie Montrose Promotes
ALS Awareness
ALSA Western OH
Chapter's
Grape Event 2000, Terry and Kyle with Caregiver
Doris Carlson and daughter Pam
in memory of Larry Carlson
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THE PAST LEADS TO THE FUTURE |
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Who is
that crossing the Golden Gate bridge?
7000 + Miles in 29 Days
Our incredible ALS awareness adventure on the
Historic
June 4-22
California, Arizona
New Mexico, Texas
Oklahoma, Kansas
Missouri, Illinois
Indiana, Ohio
Please Click HERE
for middletown.com feature story
Please Click HERE
for Terry's journal and our slideshow
In Eternal Loving Memory -
My Grandma, Bea Irvin
September 3rd 2001 and Mom, Judy Hahn August 24th
2001
In Memory of Marnie ...
In
Memory of Dianne
In Memory of
Cynthia Shaw Crispen
In Memory of
Deardra Hingle
Ln Memory of Doug Eshleman
In Memory of Mary Yoder
For ALS Patients, a Drug
With a Clouded Future (washingtonpost.com)
7-21-97
March of Faces RALLY at the
FDA
8-7-97
March of Faces RALLY at the
FDA"
10-10-97
March of Faces RALLY / FDA
Meeting
THE LITTLE PROTEST
AT CBS 60 MINUTES
LEARNING AND RAISING ALS AWARENESS -
WHAT A COUPLE OF TEN YEAR
OLDS CAN ACCOMPLISH
March of Faces
Florida *BIG YELLOW BUS* Tour April 11 - 18 1998
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Brad Grantham and
The March of Faces Banner on PIKES PEAK 1998
 March & Roll
1998 Washington D.C.
 Doug Eshleman -
March & Roll 99' Washington D.C.
From Sea to Shining
Sea" PALS ACROSS AMERICA 1999
The
ALS March of Faces at The Boston Marathon, April
17, 2000
The KISS
Farewell Tour 1973-2000: Paul Stanley, Gene
Simmons with John and Kyle
The
ALS March of Faces Banner Raising Awareness at
the Falls, Niagra, NY - 7.30.2000
 Steve Fowler -
Musician and PALS
 My Brother, Tobin
holding the very first banner at the FDA -
7.21.97
 Mike Wallace, My
Soulmate Terry and I on the set of CBS 60 Minutes
 Jazz Legend -
Charles Mingus "Epitaph"
Major Michael
Donnelly - Gulf War Illnesses/ALS Advocate -
Falcon's Cry
Baseball Hall of
Fame Detroit Lion, Al Kaline, PALS Mark Reiman
 My friend Jason
"Shreadmeister" Becker
 Cincinnati
Bengal Superbowl XVII Dave Lapham, PALS Kevin
Heidrich and I
Susan Hufford
Zaslow and Kyle at the May 1999 ALSA Day on the
Hill Congressonal Reception
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My
ALS Clinic - click 
Download this FREE
on-screen keyboard from MILO SOFT at the
ALS March of Faces - click 
Download
this FREE Voice software!. 
JOURNEYS WITH ALS (33 Personal
tales of courage and coping with ALS)
click 
Internet
Guide the United States Congress - click 
Legislative
Information on the Internet: Legislation,
Congressional Record & Committee
Information - click
